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Emily’s Place
  • Home
  • Our Mission
  • Founder And Director
  • The Research Need
  • Our Stories
    • The Gift of Emily
    • Prisoner in Own Body
    • Wren’s Flight 2020
    • Head Above Water
    • A Beautiful Day 2019
    • The Rescue 2023
    • shaved my head today
    • The Caged Nightingale
    • The Mighty Tepary Bean
  • A Heartsong Published
  • Advocacy Campaign
  • Contact Us
  • Blog
Mystical paintings of a girl pouring water and a tree embracing human figures.

DEFENDERS OF THE VULNERABLE

America’s Pain Refugees: Anthem To Their Cry

Note: Advocacy positions expressed here are those of Emily’s Place The One. They are separate from the proposed research, which makes no policy claim and would be independently designed and governed by a university principal investigator.


🕊️Defenders of The Vulnerable🕊️


              R E S T O R I N G  

   

                    L I F E. TO


          P A I N  R E F U G E E S


CONSIDER THIS ANTHEM of their plea: written and sung by a brain cancer patient who hopes to never ends up a pain refugee like the 38 year old woman for whom I am a 24/7 caregiver and advocate —https://youtu.be/XG30py1pJ8c?si=DIAVo-2M-ai3xa7L 


Hear their beautiful hearts…and consider this beautiful truth! 


you can help them (just by reading)


"Once I was a dreamer, 

and I spent my days up in the clouds.

Once I was a believer

And I thought I knew what life was all about…


now I’m shocked and confused as I try to move, 

and I spread my wings to fly, but I fall. So now Im broken…


was I forgotten…?


cause everything went so rotten…


…We're begging please, will you take this from us…

so we can spread our wings and fly? 


Please..don’t leave me now. 


I need you to SEE me now…


I need some borrowed strength from you 

so I can pull myself through…


Our vulnerable in unending unmanaged intractable pain NEED US. Perhaps you might want to watch this award winning documentary Pain Warriors to find out more ? 👉www.painwarriorsmovie.com


And consider…


The Poor Girl

The Professor 

The Ivy League Grad


READ HOW the Poor girl—rescued by a stranger—in loving her gift forward, discovered the ivy league grad, the professor, and the 70 yr old veteran all struggling to survive living…in the barren landscape that paincare has become in our country. https://www.facebook.com/100090293010989/posts/261453193541113/?mibextid=cr9u03


THEY ARE NOT ALONE, their lives being at risk: Danny Elliot, who relied on pain medication to treat painful lifelong complications from an electrocution 30 years before, was found dead by suicide November 2022 along with his wife, Gretchen, (who was healthy and not a pain patient) after the DEA rescinded his license and he was in a gap of care. She couldn’t live without him. (Source: Vice, Independent) A third patient of the same practice died shortly after (Vice)


NOTHING CHANGED (small ask👇🏼)


Legislators, Journalists, I am adding my voice to theirs YOU ARE OUR ONLY HOPE to get protections carved out for them—to free them from the agony of being trapped as prisoners in their own bodies. To give them back THE LIVES THEY LOST with across the board fear-forced tapers having MME caps without regard to fast metabolizers genetically, and expensive alternatives still NOT COVERED by insurance. Please restore the Hippocratic oath in our doctor patient relationships. Nationalpain.org


MEDPAGE TODAY'S

KevinMD.COM

***Rethinking U.S. opioid policy***

RE: metabolizer genetics and the clinician’s unresolvable dilemma

RICHARD A. LAWHERN, PHD CONDITIONS OCTOBER 24, 2023 (copyright consent) 


Sincerely, 

Regina Sën


HELP BUILD MOMENTUM! (copy/paste this letter into email) with brief message *from you* to your legislators, email ⬇️ addresses: ***PLEASE DEFEND OUR VULNERABLE***

                 

U.S Congress emails👇🏼

http://www.house.gov/representatives/find-your-representative


U.S. Senate emails 👇🏼

https://www.senate.gov/senators/senators-contact.html


Images with permission www.verena-wild.com

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