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Emily’s Place
  • Home
  • Our Mission
  • Founder And Director
  • The Research Need
  • Our Stories
    • The Gift of Emily
    • A Beautiful Day 2019
    • Prisoner in Own Body
    • Wren’s Flight 2020
    • Head Above Water
    • The Rescue 2023
    • The Caged Nightingale
    • The Mighty Tepary Bean
  • A Heartsong Published
  • Advocacy Campaign
  • Contact Us
  • Blog

we're after the same rainbow's END

courtney's dream (2min read)

Meet Courtney! Though she is missing about a third of her brain due to a slow growing brain tumor, she has never lost her stunning voice. Before she was diagnosed with cancer, she was a professional musician, college instructor, and the owner of a private music studio. Now, she spends most of her time trying to "make life awesome" during the time she has left with her five children.


In this heartfelt rendition of Moon River, above, Courtney sings about us all being “after the same rainbow’s end...waitin’ round the bend.” Unfortunately, this rainbow is FAR, FAR away in so many heartbreaking ways.


 Emily, who helped care for our founder Regina Sën (afflicted by NeuroLyme) as well as Courtney, came home one day after visiting and working with Courtney saying, "It must not matter what attacks the brain, the debilitating symptoms and deficiencies are nearly the same!” 


Slow cognitive processing, quick onset exhaustion, sensory torture, severe short-memory/focus difficulties, inexplicable fatigue, and so much more plague women with neurolyme and terminal brain cancer. Even the smallest of tasks, like reading the mail or doing a load of dishes can tip them over, putting their nervous system on edge and causing them to collapse from exhaustion for hours, if not days, at a time. They need to be carried above what causes their bodies to fall, so they can fly again.   


THE DREAM WE CAN MAKE COME TRUE

A change of environment is necessary to help women struck by debilitating illness become the best they can be. In the words of Psychologist Benjamin Hardy (PhD), author of Willpower Doesn’t Work, “Human beings evolved needing two key types of environments: high stress and high recovery.” 


Women and families affected by neurolyme and brain cancer are trapped in a high stress environment. There is no time for high recovery where learning, peace, and growing to improve together can happen; there is only survival.  


STEP 1: GET OUT OF SURVIVAL MODE

When Emily came to Regina’s home and did for her the things that caused her to collapse in exhaustion because of Neurolyme, which incidentally are the same for Courtney, it freed her from survival mode and in so doing she was able to heal. In a state of being able to reflect, Regina now knows that her functioning level and ability to connect and make life awesome in family life was stifled by the fruitless daily effort to get her head above water trying to carry out  household responsibilities that her body could no longer sustainably do. In the absence of an alternate plan, her body broke down.


After Emily came and took these responsibilities off her shoulders, Regina  noticed several debilitating symptoms either significantly lessened or disappear all together. 


NOTE: What Emily did for Regina could not be sustainable longterm, but six months was just what Regina needed to get her life back and on her feet, finally getting her Neuro-tickborne Illness into remission. 


IF REGINA’S CONDITION HAD BEEN PERMANENT

Getting the family out of Survival Mode

would have been an imperative first step.


OUR THREE PART VISION

Survival Mode Buster Dream Team

New Vision Triumph Program For Kids

Chronically Thriving Triumph For Moms


WE ARE BLAZING A NEW TRAIL

BECAUSE TOO MANY

WAGON WHEELS ARE BREAKING

AND TOO MANY FAMILIES STRUGGLE 

UNNECESSARILY AND FALL APART



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Welcome. We’re so glad you’re here.

Emily’s Place The One walks beside women sidelined by catastrophic illness or injury as they reclaim dignity, safety, and life, and find a new heartsong.

To the clinicians who stay with the hardest cases: thank you. You are often the reason someone holds on.


We are seeking a university home for a REALtime Pain-care Safety and Access Reporting Pilot to measure the impact of disrupted paincare and undertreated pain on patients, caregivers, families & the public. Please join us where hope springs eternal.

[Learn about REALtime] [Read The Gift of Emily]

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