Neurolyme Family Support for Families Affected by Brain Cancer

When mothers are afflicted by NeuroLyme and brain cancer, families experience the emotional turmoil equivalent to a category five hurricane inside the home, as the winds of distress never stop and the rains of uncertainty never end. 

"It's an exception, rather than the norm, that marriages survive the storm of Lyme Disease," states Dr. Trippa. 

According to Michael J. Glantz, MD, cancer is linked to an "exorbitant increase" in divorce rates, with women disproportionately carrying the burden of this effect. 

Norton, president of the American Society of Clinical Oncologists, emphasizes, "I counsel women from the start that their marriages are at risk." 

THE GAP WE FILL AT EMILY’S PLACE 

In the United States, customs and traditions often marginalize and isolate families dealing with chronic health conditions, including those managing life with NeuroLyme. The prevailing mentality suggests that the "strong" are those who "quietly suffer" because everyone faces some challenge. This notion of noble suffering perpetuates the idea that sickness or pain should not hinder our lives, often leading to the misconception that mental toughness is measured by how quickly we return to normal after a significant health crisis, like surgery for brain cancer. 

Those who do not meet these societal expectations are frequently criticized and looked down upon. I have personally found that NeuroLyme defies these norms; its existence challenges conventional thoughts and ideals. A key mission at Emily’s Place is to educate and raise awareness about the harrowing experiences of those trapped by their suffering and the overwhelming family stress caused by chronic health conditions. We aim to help individuals escape this limited perspective when considering the plight of families affected by NeuroLyme. 

EMILY'S PLACE IS SEEKING 

Funding to better support families at risk from brain cancer and NeuroLyme. 

Our goal is to create awareness and prepare a survival guide for women and families coping with the impacts of NeuroLyme and the invasive surgeries required to remove cancerous brain tumors. 

We also aim to form Triumph Teams, which will have an immediate and positive impact on the lives of these families. These teams will assist in remodeling home environments to better suit the demands of their new normal. This includes home re-modelers, space designers, professional organizers, and wilderness therapy opportunities (New Vision) to help children cope with their trauma and loss. Furthermore, we will establish Triumph support groups to empower mothers on their journey of triumph. 

QUESTIONNAIRE FROM PROFESSIONAL ORGANIZER, AND BOARD MEMBER, AIMEE DOZE 

Is your family straining under the adverse effects of chronic health conditions on your home environment because of a mom’s brain disorder? Click Here. 

CLICK HERE FOR THE REALITY OF WHAT FAMILIES FACE 

PLEASE CONSIDER DONATING NOW 

THESE FAMILIES NEED OUR HELP 

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